# National Organization for Rare Disorders

> U.S. nonprofit organization

**Wikidata**: [Q16930739](https://www.wikidata.org/wiki/Q16930739)  
**Wikipedia**: [English](https://en.wikipedia.org/wiki/National_Organization_for_Rare_Disorders)  
**Source**: https://4ort.xyz/entity/national-organization-for-rare-disorders

## Summary
The National Organization for Rare Disorders (NORD) is a U.S.-based nonprofit organization that advocates for people with rare diseases and supports research into treatments and cures. Founded in 1982, NORD serves as a leading resource for information, advocacy, and research in the rare disease community.

## Key Facts
- Founded in 1982.
- Headquartered in Danbury, Connecticut.
- Classified as a nonprofit organization and research institute.
- Operates under the legal form of a 501(c)(3) organization.
- Has a subsidiary, the Mitochondria Research and Medicine Society.
- Maintains a website at [rarediseases.org](https://rarediseases.org/).
- Active on social media, including Twitter (@rarediseases) and Instagram (@nord_rare).
- Publishes a podcast, *NORDpod*, with an RSS feed available at [rss.art19.com/nordpod](https://rss.art19.com/nordpod).

## FAQs
### Q: What is NORD’s mission?
A: NORD’s mission is to improve the lives of people with rare diseases by providing information, advocacy, and support for research into treatments and cures.

### Q: How does NORD support rare disease research?
A: NORD supports rare disease research through advocacy, funding initiatives, and collaboration with researchers and healthcare professionals.

### Q: What types of resources does NORD offer?
A: NORD offers resources such as a database of rare diseases, patient support programs, and educational materials for patients, families, and healthcare providers.

### Q: How can individuals get involved with NORD?
A: Individuals can get involved by joining NORD’s advocacy efforts, participating in research studies, or donating to support NORD’s mission.

### Q: What is NORD’s financial status?
A: NORD’s financial status includes reported revenues, donations, and total assets, with the most recent data available for 2023.

## Why It Matters
NORD plays a crucial role in the rare disease community by providing essential resources, advocacy, and support. By raising awareness, funding research, and connecting patients with critical information, NORD helps improve the lives of those affected by rare diseases. Its work is vital for advancing medical knowledge and developing treatments for conditions that are often overlooked due to their rarity.

## Notable For
- Leading advocacy for rare disease patients and families.
- Maintaining a comprehensive database of rare diseases.
- Publishing *NORDpod*, a podcast that educates and engages the rare disease community.
- Collaborating with research institutions and healthcare providers to drive innovation.
- Providing patient support programs and educational resources.

## Body
### Overview
NORD was established in 1982 to address the needs of individuals with rare diseases. It operates as a nonprofit organization with a focus on research, advocacy, and patient support.

### Headquarters and Operations
NORD is headquartered in Danbury, Connecticut, and operates under the legal form of a 501(c)(3) organization. It has a subsidiary, the Mitochondria Research and Medicine Society, which supports mitochondrial disease research.

### Financial Information
NORD’s financial data includes reported revenues, donations, and total assets. The most recent financial information is available for 2023, with reported revenues of $66,397,453 and total assets of $65,154,464.

### Digital Presence
NORD maintains an active online presence, including a website, social media accounts, and a podcast. The organization’s website, [rarediseases.org](https://rarediseases.org/), serves as a primary resource for information and support.

### Social Media and Podcasting
NORD engages with its audience through social media platforms such as Twitter (@rarediseases) and Instagram (@nord_rare). The organization also publishes *NORDpod*, a podcast available on various platforms, including Apple Podcasts and RSS feeds.

## Schema Markup
```json
{
  "@context": "https://schema.org",
  "@type": "Organization",
  "name": "National Organization for Rare Disorders",
  "description": "U.S. nonprofit organization advocating for people with rare diseases and supporting research into treatments and cures.",
  "url": "https://rarediseases.org/",
  "sameAs": ["https://www.wikidata.org/wiki/Q16930739", "https://en.wikipedia.org/wiki/National_Organization_for_Rare_Disorders"],
  "additionalType": "ResearchInstitute",
  "foundingDate": "1982",
  "location": {
    "@type": "Place",
    "address": {
      "@type": "PostalAddress",
      "addressLocality": "Danbury",
      "addressRegion": "CT",
      "addressCountry": "US"
    }
  },
  "legalName": "National Organization for Rare Disorders",
  "taxID": "13-3223946",
  "hasOfferCatalog": {
    "@type": "OfferCatalog",
    "name": "Rare Disease Resources and Support"
  }
}

## References

1. Apple Podcasts
2. GeoNames
3. GRID Release 2017-01-10
4. Virtual International Authority File
5. BnF authorities
6. CiNii Research
7. ROR release v1.19
8. [Home - NORD (National Organization for Rare Disorders)](https://rarediseases.org/)
9. [Source](https://www.charitynavigator.org/ein/133223946)
10. Google Knowledge Graph
11. [NORD (@nord_rare) • Instagram photos and videos](https://www.instagram.com/nord_rare/)
12. Nonprofit Explorer
13. [Nonprofit Explorer](https://projects.propublica.org/nonprofits/organizations/133223946)
14. GRID Release 2015-12-14
15. GRID Release 2016-12-06
16. Aligned ISNI and Ringgold identifiers for institutions
17. [NORDpod on Apple Podcasts](https://podcasts.apple.com/us/podcast/nordpod/id1511001441)
18. [Source](https://www.charitynavigator.org/index.cfm?bay=search.summary&orgid=6741&oldpage)
19. National Library of Israel Names and Subjects Authority File
20. YouTube API